Email your testimony to: Admin@allthingskabuki.org
*I must say after a long month of appointments receiving the birthday card meant so much to not only Nina, but her father and I. I cried my eyes out because for once I did not feel alone. Thanks so much.
*All Things Kabuki, as an organization, has truly inspired my family and in turn has helped me inspire and bring awareness to people in my community. Rene has sent me business cards with a blurb about Kabuki Syndrome on the back, and encourages random acts of kindness to garner support for Operation Kabuki Christmas, a program dedicated to helping Kabuki Kids and their families have a memorable Christmas. I can't say enough good things about this organization and all the help they provide for so many, while getting people to better understand my own child's syndrome.
*I can't thank ATK enough for all they have done for my family. My daughter needed glasses and we couldn't afford them due to my husband being hurt on the job and loosing his job and all the other medical expenses there are. Well they stepped up and she had glasses a month later. She cherishes those glasses. They have also helped us give our children a Christmas the last two Christmases. I would have never been able to give them anything. I am truly thankful for everything they have done. My daughter designed a t-shirt and wanted to donate the money she raised from selling them to sponsor a child for Operation Kabuki Christmas. We were able to give a child a great Christmas with the money raised. This is an amazing organization run by truly amazing people.
*Our son Joshua who turns 14 on March 21,2015 was born with Kabuki syndrome. It has been a up and down journey with many obstacles challenges and victories. Parenting a special needs child is not for the faint of heart as it can be the biggest test if faith ,strength, commitment and a strain of finances. This is why I am so thankful for ALL THINGS KABUKI and the amazing people who run this charity. Not only do they spread awareness but they support families like mine that are affected by KS in so many ways. You aren't just a name and number to ATK, you are part of the KS family. 2014 was a particularly challenging year for us. My son faced many serious health issues resulting in many hospital visits and a lot of lost work. My daughter also dealt with some pretty serious health issues in the past 18 months requiring many daily hospital visits and strain of our finances so this Christmas we found ourselves in a tight spot. That is when ATK and Operation Kabuki Christmas stepped in to help us give our kids the Christmas they deserved. Through the generosity of the people behind ATK and the sponsors my kids were blessed with a Cchristmas miracle of gifts under the tree that we would have been hard pressed to provide because of uncontrollable circumstances. It was a burden lifted and we cannot thank ATK enough for this gift of peace for us and holiday joy for our children. We hope to be able to give back to ATK and be a blessing to other KS families. The work ATK does is so important. When you have a child with a rare disorder it is easy to feel lost and not know where to begin in finding resources and people who can relate to your journey. ALL THINGS KABUKI is a great starting point for families new to this diagnosis and a great on going support for the years to come. This organization is undoubtedly growing and I cant wait to see it grow to help more and more families like mine feel less and less alone. My children also participate in the KS Pen Pal Club and it has given me joy to see my son connect with kids like him and my daughter to connect with siblings who understand what it's like to be a KS sibling. Thank you ATK for all you do.